|
|
| General E-newsletter
Archives 01-Oct-2003 |
||||||||||||||||||
|
Please note that this is an archive copy of a newsletter previously sent out by Contact a Family. Information provided here was correct at the time the e-newsletter was issued. It may have changed since then.
This is the Contact a Family General E-newsletter ------------------- Contents ========== 1. Green Paper 2. Residential special schools 3. Family Information Day 4. Aids and Equipment 5. National standards for the under 8's 6. Toilets on planes 7. Shared Care 8. Parents sought 9. Rare disorders 10. Parents Week 11. Share an Idea 12. Christmas Cards 13. "Services for disabled children" - Audit Commission report 14. Publication translations 15. Mobile phone recycling 16. The Contact a Family Directory 17. Shopping 1. Green Paper ========== On 8th September the Prime Minister welcomed a Children's Green Paper 'Every Child Matters.' Every Child Matters sets out for consultation a framework for improving outcomes for all children and their families, to protect them, to promote their wellbeing and to support all children, including disabled children, to develop their full potential. It focuses on four main areas: - Early intervention and effective protection - Supporting parents and carers - Accountability and integration - locally, regionally and nationally - Workforce reform Contact a Family welcomes the Green Paper although there are a number of areas where we will be making comments about how services for disabled children and their families can be improved in practice. If you want to see what is in the Green Paper, a full and a summary versions can be downloaded from http://www.dfes.gov.uk/everychildmatters Paper copies of the full version cost £22 and are available from The Stationery Office, PO Box 29, Norwich NR3 1GN Tel: 0870 600 5522 mailto:orders@theso.co.uk Paper copies of the summary version (Ref. DfES/0672/2003) and the children and young people's version (Ref. DfES/0673/2003) can be obtained free from: DFES Publications, PO Box 5050, Sherwood Park, Annesley, Nottingham NG15 0DJ Tel: 0845 6022260 mailto:dfes@prolog.uk.com 2. Residential special schools ========== Joseph Rowntree Foundation has produced a new booklet 'The Right Place? A parent's guide to choosing a residential special school' by Jenny Morris. The free booklet gives information about the sort of questions parents may want to ask when considering whether a residential school would be the best option for their child. Although the legislation quoted refers only to England and Wales, the tips for parents would be useful for parents across the UK. You can order it by e-mailing mailto:orders@yps-publishing.co.uk or download a PDF file from http://www.jrf.org.uk/bookshop 3. Family Information Day ========== Saturday October 18th between 10am - 3pm sees a free family day at The Children's Trust, Tadworth, Surrey. Workshops on education, benefits, behavioural issues and much more. Open to all families whose children have been affected by acquired brain injury and also interested professionals. For more information and to reserve a place contact 01737 365865 or 365088. 4. Aids and Equipment ========== The Disability North Exhibition takes place on 8th, 9th and 10th October at Gateshead International Stadium. It is free and a great chance for families and professionals to have a look at a huge range of aids and equipment for disabled people. For more information and to pre register (avoiding queues) call Disability North on 0191 284 0480 or e-mail mailto:marketing@disabilitynorth.org.uk and put 'Fast Track' in the subject box. 5. National standards for the under 8's ========== The Department for Education and Skills in England has published standards for the under 8's in day care and childminding. You can see the standards at http://www.surestart.gov.uk/_doc/175-CD2074.pdf 6. Toilets on planes ========== For many disabled people, using the toilet on a flight is very difficult. The Disabled Persons Transport Advisory Committee has produced some new guidance for the aviation industry and wants to know what you think. You can see this at http://www.dptac.gov.uk/pubs/aviation/consult/index.htm and responses are welcome up to 17th October. 7. Shared Care ========== For Shared Care Week, 22nd -28th September, the Shared Care Network produced a new report on short break services for children with complex care needs. You can see it at http://www.sharedcarenetwork.org.uk/scn/dynamic/scn29.shtml 8. Parents sought ========== Patient and Public Involvement Forums are looking for volunteers across England with experience of using the NHS. You will get involved in watching over the quality of health care and helping to find out what local people think about health services. You can find out more at http://www.maketimeforhealth.org 9. Rare disorders ========== Contact a Family has been involved in a new linking project funded by the Headley Trust. We have been actively contacting families who we know have a child with a particular medical condition, where there is no support group in the UK. We have then been arranging telephone conferences so that a group of parents can speak to others across the UK who have been affected. The first two conferences have been held for Duane Syndrome and Norrie Disease. These two groups enjoyed the experience and will be meeting again, so if you are affected by either condition and would like to join in, please e-mail mailto:liz@cafamily.org.uk We are also starting to look for families affected by Townes-Brockes Syndrome, Henoch Schonlein Purpura and McCune Albright Syndrome. Again, do let Liz know if you are affected by any of these conditions and would like to speak to other families. 10. Parents Week ========== 20th October - 26th October is Parents Week, organised by the National Family and Parenting Institute. There are events in many parts of the UK, such as Family Fun Days, storytelling in libraries and so on. You can see if there is anything local to you at http://www.nfpi.org/data/parents_week/event_regions.htm For Parents Week, Contact a Family will be launching a new booklet 'Making Contact' explaining all the ways of getting in touch with other families with disabled children. You can order a free copy from mailto:helpline@cafamily.org.uk 11. Share an Idea ========== The Autumn 2003 edition of our newsletter can now be downloaded in pdf format from http://www.cafamily.org.uk/SaI033.pdf (0.5Mb). This issue focuses on Transition. 12. Christmas Cards ========== We have two new Christmas Card designs, "Seasonal Trio" and "Seasonal Quartet" which cost £2.50 for a pack of 10 cards. Three of our old designs are now available at half price - just £1.25 for 10 cards. To view all the designs visit our online shop http://www.free2build.com/stores/cafamily/shophome.php 13. "Services for disabled children" - Audit Commission report ========== The Audit Commission have produced an important report on services for disabled children. Find out more on our Campaigns, Policy and Research page http://www.cafamily.org.uk/campaigns.html 14. Publication translations ========== Translated pdf versions of our general leaflet can now be downloaded in: - Punjabi http://www.cafamily.org.uk/CaFLeafPunjabi.pdf (0.5Mb) - Urdu http://www.cafamily.org.uk/CaFLeafUrdu.pdf (0.5Mb) and a translated text-only version of our guide for parents "When Your Child Has Additional Needs" is now available in: - Gujarati http://www.cafamily.org.uk/WhenYourChildGujarati.pdf (0.3Mb) 15. Mobile phone recycling ========== Recycle your old mobile, help the environment and raise money for Contact a Family. Find out how at http://www.cafamily.org.uk/recycle.html 16. The Contact a Family Directory ========== This month there are the following new entries: - Alkaptonuria http://www.cafamily.org.uk/Direct/a32.html - Jacobsen Syndrome http://www.cafamily.org.uk/Direct/j10.html - Multiple Endocrine Neoplasia Type I http://www.cafamily.org.uk/Direct/m43.html - Multiple Endocrine Neoplasia Type II http://www.cafamily.org.uk/Direct/m44.html - Townes-Brocks Syndrome http://www.cafamily.org.uk/Direct/t26.html and the following entry has substantially updated medical text: - Cerebral Palsy http://www.cafamily.org.uk/Direct/c24.html 17. Shopping ========== Viking office supplies have now joined our internet shopping partners UshopUgive. If you use this link http://tinyurl.com/p6jp to place your order Contact a Family will receive 2.5% commission on any purchases from Viking. You must always use this link - if you go to the Viking site direct then we won't get the commission. To see what other companies are offering commission to Contact a Family go to http://www.ushopugive.com/default.asp?charid=144 -------------------- General E-newsletter Regular information from Contact a Family For details of this newsletter please go to:- http://lists.cafamily.org.uk/mailman/listinfo/general To manage your subscription by e-mail , send a blank e-mail with "help" as the subject line to mailto:general-request@cafamily.org.uk Questions about the newsletter should be sent to mailto:general-admin@cafamily.org.uk ------------------- Contact a Family is a UK based, registered charity for families with disabled children. We offer a helpline (free in the UK) for families - 0808 808 3555 http://www.cafamily.org.uk mailto:info@cafamily.org.uk 020 7608 8700 -- end -- |
 Recent news  Make a donation  0808 808 3555 Call our free helpline or click here to e-mail them |
||||||||||||||||
| Contact a Family use PHPlist v 2.9.4, ©tincan ltd for our E-newsletters. | ||||||||||||||||||
|
||||||||||||||||||
| This Web
Site © Copyright, Contact a Family 2002. Although great care has been taken in the compilation and preparation of this work to ensure accuracy, Contact a Family cannot accept responsibility for any errors or omissions.Any medical information is provided for education/information purposes - you should obtain further information from your medical practitioner. Any links to external websites have been carefully selected but are provided without any endorsement of the content of those sites. Contact a Family, 209-211 City Road, London EC1V 1JN Tel (020) 7608 8700. |
